Three people with ALS confront complex choices in this intimate exploration.
Independent Lens – Matter of the Mind: My ALS airs Sunday, January 28 at 3 p.m. on WXXI-TV
Amyotrophic lateral sclerosis (ALS) is a neuromuscular disease with an average survival time of 2-5 years from diagnosis. In this intimate exploration, three people with ALS, or Lou Gehrig’s disease, bravely face different paths as they live with this progressively debilitating illness.
This program is presented as part of Dialogue on Disability, a partnership between WXXI and Al Sigl Community of Agencies – in conjunction with the Herman and Margaret Schwartz Community Series. Dialogue on Disability is supported by the Fred L. Emerson Foundation with additional support from The Golisano Foundation. The weeklong initiative runs January 22 through January 28, 2024.
WXXI and Al Sigl have been hosting Dialogue on Disability since 2005. In 2014, with the support of businessman and philanthropist Tom Golisano and the Golisano Foundation, Move to Include™ was formed. This initiative enables WXXI to present and develop programming that promotes inclusion year round.
Photo: Phil Freelon and his son Pierce Freelon pose for photo in Durham, NC • Credit: David Alvarado