Unseen: How We're Failing Parent Caregivers & Why It Matters

An estimated 16.8 million people in the U.S. are caregivers for children and adults who have developmental and intellectual disabilities and/or who have complex medical needs.  The intense requirements of daily life which can trigger chronic stress and negatively affect the mental and physical wellbeing of parents and caregivers. With limited services and supports and uncertainty about the future, caregivers often face isolation and exhaustion. In Unseen, parent caregivers are authentic about their lived experience.

Video diaries from diverse caregivers featured in the film illustrate the universality of the topics explored, while interviews with mental health and legal experts provide a broader view on the societal impacts. Through the power of unfiltered, compelling stories, the Unseen documentary cultivates compassion and serves as a catalyst for change for caregivers in our communities. Learn more at caregiverdoc.com.

“Home is supposed to feel like a sanctuary, but it just doesn’t feel that way…We’re just hanging on by a thread most times... It’s not his fault, and that’s the hardest part. It’s nobody’s fault. It’s just part of our life as caregivers.” Ryan Ronne

This screening event is part of Dialogue on Disability, a partnership between WXXI and Al Sigl Community of Agencies - in conjunction with the Herman and Margaret Schwartz Community Series. The weeklong initiative, which runs January 9-15, is designed to stimulate community dialogue about the perspectives and abilities of people with physical, developmental, and intellectual disabilities. Dialogue on Disability is supported by the Fred L. Emerson Foundation with additional support from The Golisano Foundation.