Move to Include coverage on WXXINews.org

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MOVE TO INCLUDE is a partnership between WXXI and the Golisano Foundation designed to promote inclusion for people with intellectual and physical disabilities. Through programming and special events, WXXI and the Golisano Foundation look to build a more inclusive community by inspiring and motivating people to embrace different abilities and include all people in every aspect of community life. Share your thoughts with us here
Updated: 57 min 5 sec ago

Advocates for people with disabilities ask property owners to keep sidewalks clear

Fri, 02/01/2019 - 4:37pm
With temperatures finally headed back above freezing, this might be a good time for homeowners to clear sidewalks of ice and snow. Ericka Jones is an advocate for the Center for Disability Rights in Rochester. She uses a wheelchair to get around. She says this winter has been tough on her and a lot of other people with disabilities. “Honestly it really only takes about an inch of snow for me to get stuck,” Jones said. “And that’s happened at least once or twice this winter.” Jones says a couple of years ago the City of Rochester and the Center for Disability Rights partnered on an initiative called “ Clear the snow so all can go ” to bring awareness to the issue. “They’re really holding property owners and business owners accountable for making sure that they shovel their walks so that people can use the sidewalks freely.” Jones says she hopes everyone would be more considerate of her neighbors and clear sidewalks for everyone who needs it. “Take a look around your properties, around

'Sensory-Friendly Sunday' lets kids with sensory processing issues enjoy Strong Museum on own terms

Fri, 02/01/2019 - 6:01am
For kids with autism or other sensory processing disorders, going to loud, crowded places like the Strong Museum can be overwhelming. That’s why the museum started Sensory-Friendly Sundays, making accommodations so all children can enjoy a comfortable visit. Sensory-Friendly Sunday was a one-off event in 2018. But Noelle McElrath-Hart, spokesperson for The Strong, said they had so much positive feedback, they’re planning a couple this year. “You know, there’s a lot of families who love coming to the museum, but for some of them it can be a little intimidating if they have special needs," she said. "So we’re really excited to offer this in an ongoing goal of inclusivity in the museum.” On these specific Sundays, the museum opens a few hours early and caps ticket sales at 250 people. The lights are lower, the games and exhibits are quieter, and all of the families here have kids with sensory issues. Jenny Emerson is here with her two children, Mason and Laura Jane. Mason has autism and

WATCH: SportsNet makes sports accessible

Mon, 01/21/2019 - 5:00am
https://youtu.be/VbqJ81wYv9k World champion ski racer, Lindsey Vonn, has said: “I always channeled what I felt emotionally into skiing - my insecurities, my anger, my disappointment. Skiing was always my outlet and it worked.” Snow sports have long been hailed for their therapeutic benefits. Benefits available to all people of all different abilities. For decades, a local program has been making such benefits an option by offering adaptive sporting opportunities to individuals with disabilities. We learn more about SportsNet and the work to make access to sports available to all.

WATCH: How to eliminate barriers to care for those with disabilities

Sun, 01/20/2019 - 11:00am
https://youtu.be/B_exnd6BkGA Going in for a mammogram, learning how to keep your cholesterol in check, and understanding your blood pressure all represent basic health care. And yet, what might be called “basic” and “easily accessible” are anything but for some individuals with disabilities. There are a number of gaps and barriers to healthcare impacting the long term health of some in the Rochester community. On this edition of Need to Know, we make these disparities known plus discuss measures to eliminate barriers to care.

Musicians of Rochester: Honey Meconi

Fri, 01/18/2019 - 11:01am
Honey Meconi brings music history to life. In her new book, Hildegard of Bingen , Meconi offers fresh insight into one of the most creative composers of her time, Hildegard, a German writer and mystic who lived the town of Bingen on the Rhine River. In the twelfth century, she produced music, theological books, medical texts, and paintings. In Meconi’s new biography, Hildegard emerges as a strong leader and creative musician almost defiant in her conviction that God was speaking through her. For example, while most of her contemporaries were singing religious chant within in a modest range of about eight notes, her chants stretched the limits of the human voice, covering all of the known notes on the scale, well over two octaves. Singing was a vital part of daily life in her religious community. But at one point, Meconi says, she and her followers were ordered to stop making music. "Late in Hildegard’s life a nobleman came to her monastery who was dying. He had been excommunicated,

URMC planning new master’s program for sign language interpreting in medicine and science

Fri, 01/18/2019 - 5:00am
https://www.youtube.com/watch?v=KecnInqolyU Sarah Latchney is a post-doctoral fellow at the University of Rochester Medical Center. She studies environmental toxicology. She’s also deaf. Latchney learned early on that deaf students have to work exceptionally hard to get the same recognition as their colleagues who can hear. “It’s been a part of me to go the extra mile to stay on the same path as my hearing peers,” she said. When Latchney goes to scientific conferences, she often finds a striking lack of interpreters who can translate the vocabulary of her research between signed and spoken English. “I talk about electrophysiology or genetic and epigenetic principles that regulate neural stem cells in the hippocampus. If I’m at a conference using local interpreters that have no science background, they get lost,” she said. But to a hearing audience, an interpreter’s confusion often comes across as the fault of the deaf presenter. That means missed opportunities for scientific progress,

WATCH: Dialogue on Disability edition of Need to Know

Thu, 01/17/2019 - 8:00pm
https://youtu.be/wbrMtU2n0lg Adults with disabilities are four times more likely to report their health to be “fair” or “poor” compared to those with no disabilities. On this Dialogue on Disability edition of Need to Know we learn why this is happening and what’s needed to eliminate barriers to care. Also on the show, how skiing without limits is changing the way some in our community view themselves and their self-worth. And, the world of dance grieves a beloved talent who strived to make dance accessible to everyone.

Connections: Dialogue on Disability - Employment discrimination

Thu, 01/17/2019 - 3:23pm
Our Dialogue on Disability Week continues with a conversation about employment discrimination for people with disabilities. “The Good Place” star Jameela Jamil recently turned down a role to play a deaf woman, saying the role should go to a deaf actress instead. Jamil is one of several Hollywood stars speaking out about the need for more inclusion and representation of people with disabilities in the media and in the workplace. In Rochester, a report released last year revealed that poverty and unemployment are disproportionately affecting people with disabilities. This hour, our guests discuss these employment disparities, discrimination in the workforce, and their ideas for how to create a more inclusive society. In studio: Sara Taylor, vice president of employment at Rochester Rehabilitation Joe Robinson, veteran and peer job coach at Rochester Rehabilitation David Witkiewicz, veteran and data entry specialist at Rochester Rehabilitation

Connections: Dialogue on Disability - An update on early intervention services in Monroe County

Wed, 01/16/2019 - 3:31pm
We continue our Dialogue on Disability Week with an update on the state of early intervention (EI) services in Monroe County. In early December, county officials announced a temporary solution to what some local providers called a brewing crisis in EI services. A shortage in providers and funding would have led to about 1,200 children being waitlisted for programs, but the county has since allocated six Department of Health employees to coordinate intake services. Parents and providers say more support is needed. This hour, we look at the current state of early intervention programs and discuss how they benefit children in need. In studio: Beth McLellan, early childhood administrator at the Rochester Hearing and Speech Center Jason Zuch, speech-language pathologist at the Rochester Hearing and Speech Center Diane Kozar, vice president of children’s programs and clinic at CP Rochester and Happiness House Bridget Morgenstern, parent whose twin sons attend the Rochester Hearing and Speech

Connections: Dialogue on Disability - "Perfectly Normal for Me"

Tue, 01/15/2019 - 3:19pm
It's Dialogue on Disability Week and we kick off our series of conversations on Connections with a discussion about inclusive recreation activities. The film “Perfectly Normal for Me” tells the story of three children with disabilities as they prepare for a spring recital as part of their after school dance program. We preview the film and talk with local parents, teachers, and education coordinators about finding a balance between independence and structure for children with special needs, and what inclusion really means. In studio: Erin Davis, special education autism teacher at CP Rochester’s Augustin Children's Center Michael Radell, education coordinator and camp director at Epilepsy-Pralid, Inc. Rachel Rosner , director of education and support services at AutismUp , and parent of two children with autism

Rochester will host Special Olympic Winter Games in February

Mon, 01/14/2019 - 3:14pm
The Special Olympics Winter Games are taking place around Rochester again this year, Friday February 22nd and Saturday the 23 rd . 1,000 athletes from across state will be in the area, competing in six winter sports spread out from Swain resort to the Riverside Convention Center; with sports including Alpine and cross country skiing, figure skating and snowboarding. Stacey Hengsterman is the President and CEO of Special Olympics New York. She says athletes train all year for these games and that while it’s of course a fierce competition, there is also plenty of great sportsmanship. "You'll see tons of examples for fighting to the end or winning by that last second. Beating the buzzer and having the other team go over and make sure that team that lost feels good." Hengsterman is calling on Rochestarians to support the games by cheering athletes on at one of several game locations, or sign up to volunteer. "We've got everything else taken care of. We’ve got the officials, we've got the

A rare gift: Music prodigy Rachel Flowers

Mon, 01/14/2019 - 5:00am
When Rachel Flowers was born 15 weeks premature in 1993, she weighed just one and a half pounds. She lost her vision three months later due to a condition called retinopathy of prematurity. But when you talk to Rachel today, there's no sense of loss, disability, or limitations. The 25-year old music prodigy's world is vast and full of potential. By the time she was 4 years old, Rachel was playing Bach fugues on the piano seemingly with little effort. Now, with a flourishing music career, she composes her own songs and has befriended and sometimes performs with artists who have inspired her: Arturo Sandoval, Carl Palmer and Dweezil Zappa.